Our first question for Dr. Baker was to tell us exactly what happened and when she started to go down hill. I'm sure I will describe that more when I blog about her last day, I don't really feel like typing it all right now. But one thing that Dr. Baker did say was that, she had a lot going against her. In the beginning of the pregnancy they didn't even think she would make it to term, but she did, and without developing hydrops. So that made them a little more hopeful for her, since she didn't have that going against her as well.
She had Heterotaxy, and it's kind of a broad description (people with Heterotaxy can have a huge list of things that could be wrong, or they could be perfectly normal, but backwards), and so there's rarely ever two cases that are alike. But he said that for people with similar cases, unfortunately, her outcome is more of the rule than the exception. In a strange way, I find that comforting. I don't like that it is the rule, and not the exception. But, it makes me feel more at ease that we and the doctors, did everything we could possibly do for her.